FOR IMMEDIATE RELEASE

 October 9, 2008 — Somerville, N.J.–New Jersey Center for Tourette Syndrome and Associated Disorders, the group behind the world’s first TS DNA sharing repository, will feature an event on November 22 in Voorhees, N.J. Experts in genetics and pediatric neurology will present discussions on the diagnosis and treatment of TS.

Pediatric Neurologist Dr. Larry Brown of Children’s Hospital of Philadelphia will discuss state-of-the-art treatments for TS and associated disorders including attention deficit, attention deficit hyperactivity and obsessive compulsive disorders; depression and rage.

Dr. Jay Tischfield, Director of the NJ Center for Tourette Syndrome TS Sharing Repository at Rutgers will present information on TS genetics research. Research has revealed that Tourette Syndrome (TS) has a strong inherited component, and in recent years, the disorder has been linked to specific genes but these may account for only rare forms of TS. The repository gathers information and samples from those who have TS and/or relatives of those with TS to make this research possible. For more information on the TS Sharing Repository visit http://www.tourettesyndromeresearch.org

The November 22 event will take place at Virtua West Jersey Hospital in Voorhees, NJ. Registration is required by calling 908-575-7350.

Somerville, N.J.–New Jersey Center for Tourette Syndrome and Associated Disorders, working in partnership with County College of Morris, will present “Understanding Tourette Syndrome and Associated Disorders: A Workshop for Educators”.

The workshop will be facilitated by Julie Swenson, M.Ed., CSW a professional educator with over 15 years of experience as a school administrator.

Tuesday, October 21, 2008
6:00 P.M. to 9:00 P.M.
County College of Morris
$38.00 – register through the college
Workshop code:  88764

The workshop is designed to introduce educators to Tourette Syndrome and associated disorders with an emphasis on school-related issues. The criteria for diagnosis/clinical assessment will be explained to help teachers begin to understand the behavior of some children. The workshops will enable educators to recognize students’ difficulties, strengths, and potential. Interventions and modifications for behavior will also be addressed. Professional development hours will be offered for participation in the workshop.

BACKGROUNDER:
Tourette Syndrome (TS) is an inherited neurological disorder that is manifested in involuntary physical and vocal tics. Symptoms generally appear before an individual is 18 years old. TS affects people of all ethnic groups with males affected 3 to 4 times more frequently than females.

It is estimated that 200,000 Americans have full blown TS and that as many as 1 in 200 show a partial expression of the disorder. There is no cure for TS.

The mission of NJCTS is to support the needs of families with TS, to advocate for individuals with TS, and to educate the public and professionals on TS.
Currently NJCTS operates ten support groups at regional medical centers across New Jersey; conducts awareness training for teachers, school nurses, students and community leaders; manages a TS help line for disseminating information about TS to parents, teachers, doctors, and others; and works with Rutgers University at the nation’s only student clinician TS clinic, developing support programs and treatments for families dealing with TS.   

For more information about NJCTS, visit www.tourettesyndromeresearch.org.

October 3, 2008

FOR IMMEDIATE RELEASE

Contact: NJCTS 908-575-7350  

 Somerville, NJ–New Jersey Center for Tourette Syndrome and Associated Disorders host “Mental Health Treatment for Individuals with Tourette Syndrome: Does it Work?”  a free webinar on Wednesday, Oct. 29.
     The presentation will be led by Lori Rockmore, Psy.D, Clinical Director: NJCTS Tourette Syndrome Program, Rutgers University Graduate School of Professional Psychology. The program will run from 7:30- 8:30 p.m. All are welcome to join this informative webinar. The discussion will focus on Tourette Syndrome and its associated disorders including attendion deficit disorder, obsessive compulsive disorder, depression and rage. To register or to learn more about NJCTS, please visit www.tourettesyndromeresearch.org.
    New Jersey Center for Tourette Syndrome is non-profit organization behind the world’s first Tourette Syndrome DNA Sharing Repository at Rutgers University. The goal of the research is to help qualified scientists further the study of the genetic links to TS and ultimately lead to more comprehensive treatments.
     For more information on the Sharing Repository or NJCTS, please visit www.tourettesyndromeresearch.org.

FOR IMMEDIATE RELEASE

September  19, 2008 – Contact- Nicole Greco (NJCTS) 908-575-7350Somerville, NJ- New Jersey Center for Tourette Syndrome offers the world’s first Tourette Syndrome DNA Cell Sharing Repository at Rutgers University. This genetic material is available for research world-wide.

    The material is donated by children who have been diagnosed with Tourette Syndrome and their families in the hopes of helping researchers understand the underlying causes of TS.

    Tourette Syndrome (TS) is an inherited (genetic), neurological disorder characterized by repeated involuntary movements and uncontrollable vocal (phonic) sounds called tics. In a few cases, the vocal tics can include inappropriate words and phrases. Symptoms generally appear before a child is 18 years old.

    Researchers know TS can affect people of all ethnic groups and that males are affected 3 to 4 times more often than females. It is estimated that hundreds of thousands of Americans have full-blown TS, and that as many as 1 in 200 people show a partial expression of the disorder such as chronic multiple tics or transient childhood tics.

    The natural course of TS varies from patient to patient. Although TS symptoms range from very mild to quite severe, the majority of cases fall in the mild category.  Research through the New Jersey Center for Tourette Syndrome’s DNA Sharing Repository will lead scientists to understand more about the genetic causes and markers for the disorder, but also to more effective therapies.

    Visit www.tourettesyndromeresearch.org for more information or to volunteer for this important study.