Information For Researchers Who Want to Obtain Samples

NJCTS Sharing Repository is devoted to the collection and expedited distribution of biomaterials and clinical data for the genetic analysis of Tourette Syndrome and related disorders.  Therefore, there is no embargo period between sample submission and availability for distribution.  Anonymous data on family structure, age, sex, clinical status, and diagnosis (“clinical data”), DNA samples, blood plasma, and cell line cultures (“biomaterials”) are distributed to qualified researchers at recognized biomedical research facilities.  Researchers may gain access to clinical data, genetic analysis data, and biomaterials after receiving approval-based qualifications of the investigators in conducting genetic research on complex disorders.  For more instructions on how to obtain access to data, see the NJCTS Repository website at: http://tourette-repository.org

Description of data collection procedures

All subjects were evaluated by an experienced clinician on various diagnostic categories including Tourette Syndrome, other tic disorders, OCD, and ADHD. The repository contains data on singleton cases with TS (for case-control analyses), trios, and pedigrees. For a summary of the current data collection, clinical assessment forms, instructions for accessing the data, see the NJCTS Repository website at: http://tourette-repository.org